AirLifeLine www.aeroCare.com

AirLifeLine is a non-profit charitable organization of private pilots who donate time, skills, aircraft and fuel to fly medical missions and transport ambulatory patients with documented medical and financial need up to a distance of 700 miles.

Alpha1 Association www.alpha1.org

Alpha1 Association is a non-profit membership organization dedicated to improving the lives of individuals and their families affected by alpha1-antitrypsin deficiency.

 

American Association for the Study of Liver Diseases http://aakp.org

American Association of Kidney Patients is a national, non-profit, membership-based health organization providing education, support, and advocacy services to kidney patients and their families.

 

American Heart Association www.americanheart.org

The American Heart Association is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.

 

American Kidney Fund www.kidneyfund.org

The American Kidney Fund is a national health organization whose primary goal is to relieve the financial burden associated with chronic kidney failure through patient aid programs.

 

American Liver Foundation www.liverfoundation.org

The American Liver Foundation is a national, voluntary non-profit health agency dedicated to preventing, treating, and curing hepatitis and other liver diseases through research, education and advocacy.

 

American Lung Association www.lungusa.org

The American Lung Association is dedicated to promoting lung health and preventing lung disease.

 

American Organ Transplant Association(AOTA) www.aotaonline.org

The AOTA is a non-profit organization that helps make organ transplant surgery, travel, and aftercare available to patients and their families.

 

American Society of Transplantation www.a-s-t.org

 

Anthony Picarello Foundation

www.ap-foundation.org

The Anthony Picarello Foundation was established in 2000 as a nonprofit organization dedicated to the prevention and treatment of liver disease and awareness of organ and tissue transplantation through research and education.

 

Bone Marrow Transplant Support Online www.bmtsupport.org

A website offering support for individuals needing bone marrow transplants, as well as information and resources.

 

Campaign for Responsible Transplantation (CRT) www.crt-online.org

CRT is a non-profit organization which protests against and warns of the health risks of xenotransplantation (animal-to-human organ, cell and tissue transplantation).

 

Children’s Health Information Network www.tchin.org

Provides interactive forums, resources, internet links and peer-reviewed informational materials for families, adults with Congenital Heart Disease, nurses, and other health professionals with an interest in Pediatric Cardiology.

 

Children’s Organ Transplant Association (COTA) www.cota.org Works to ensure that no U.S. citizen is ever denied a life-saving transplant, or access to a transplant waiting list, due solely to the lack of funds.

 

Coalition on Donation www.organtransplants.org Alliance of national organizations & local coalitions dedicated to educating the public about organ & tissue donation.

Division of Transplantation (DOT) www.organdonor.gov Government agency under the Department of Health and Human Services (HHS), provides federal oversight and funding support for the nation’s organ procurement, allocation, and transplantation system. The DOT also coordinates national organ and tissue donation activities, funds research to increase donation, and administers the national bone marrow registry program.

Health Finder www.healthfinder.gov

Search engine for health information and resources sites which have been reviewed. Created by the Department of Health and Human Services (HRSA).

International Bone Marrow Transplant Registry Center for International Blood & Marrow Transplant Research www.cibmtr.org

The International Bone Marrow Transplant Registry and Autologous Blood & Marrow Transplant Registry (IBMTR/ABMTR) strive to improve the results of blood and bone marrow transplants.

www.johnfmartin.net The story of a young photojournalist with Alport’s syndrome who eventually received a kidney from his father. His story is informative and inspiring.

Kidney Directions www.kidneydirections.com Interactive patient education wed site dedicated to increasing awareness and understanding of kidney disease. The site provides information on maintaining healthy kidneys, the causes and symptoms of kidney failure and treatment.

Living Donors Online www.livingdonorsonline.org Online community for living organ donors, potential donors and their families.

National Foundation for Transplants (Formerly Organ Transplant Fund) www.transplants.org Assists transplant candidates and recipients in raising funds for transplant-related costs not covered by insurance. Also operates a grants program to help with smaller, non-recurring expenses and other transplant-related emergencies.

National Kidney Foundation www.kidney.org

National Marrow Donor Program www.marrow.org The NMDP facilities unrelated marrow and blood stem cell transplants for patients with life-threatening diseases who do not have matching donors in their families.

National Pancreas Foundation www.pancreasfoundation.org

National Transplant Assistance Fund www.transplantfund.org National nonprofit organization dedicated to providing education and financial assistance for individuals involved with organ, tissue, and bone marrow transplantation.

New Jersey Organ and Tissue Sharing Network www.sharenj.org Sharing Network is a federally certified, state-approved organ procurement organization responsible for recovering organs and tissue for New Jersey residents currently awaiting transplants.

Transplant Experience www.transplantexperience.com

Transplant Recipients International Organization (TRIO) www.trioweb.org

Committed to improving the quality of life of transplant candidates, recipients and their families, and donor families.

TransWeb www.transweb.org Nonprofit resource for the world transplant community, dedicated to promoting donation and providing transplant education for patients, families, students and professionals in the field.

United Network for Organ Sharing www.unos.org UNOS publications include the Organ Procurement Coordinator’s Handbook, the UNOS Organ Procurement, Preservation and Distribution in Transplant reference manual, Donation and Transplant Nursing Curriculum, Vital Connections Emergency Physician Kit, Organ and Tissue Donation: A reference Guide for Clergy, Brain Death Video, and the “In Sympathy” booklet and poster on the donation process.